Resources for Alzheimers Disease
We understand that undertaking the diagnosis, care and management of the disease of Alzheimer’s, whether it is you or a loved one who suffers from it, does require some resources. The following is an extensive list of Alzheimer’s disease resources for families, caregivers, and patients providing services, knowledge, and support.

1. International and National Groups

Group resources offer a lot of distinct information on every aspect of Alzheimer’s disease – from diagnosis and treatment options to the support of the caregivers and advocacy work.

Website of Alzheimer’s Association: www.alz.org

The Alzheimer’s Association is a leading voluntary health care and support organization at the forefront of sponsoring, undertaking, and facilitating research in Alzheimer’s care. They have, among other services, a helpline open every day at any time, teaching materials, support groups, and places where people can visit to get help form in the form of local chapters.

Important Resources:

The 24/7 helpline is 1-800-272-3900.

Caregiver Tools: S0me of the resources you can find under this line, mostly concern caregivers. Containing caregiving and support plans as well as hints and strategies to work with emotional & physical loads.

Alzheimer’s Navigator is a specially designed web application for creating step-by-step actions in accordance with your needs.

AFA, Alzheimer’s Foundation of America, Website: www.alzfdn.org

For people diagnosed with Alzheimer’s disease and other dementias, the AFA offers solutions and resources. Their main objectives in this process include raising awareness, educating, and helping families in a real way.

Important Assets: The national toll-free helpline is 1-866-232-8484.

Memory screens in person or paper free of cost taken on the internet.

Families, caregivers, and medical professionals have access to free webinars, oriented towards educational purposes.

Information regarding the availability of both online and personal caregiver support groups can be found here.

Alzheimer’s Society’s website is www.dementiafriends.org.

Description: It is an international campaign focusing on improving the cognitive deficit of Alzheimer’s disease patients. The Alzheimer’s Society offers a great resources and teaching aids.

Principal Resources:

Knowledge and community programs designed and implemented to raise public awareness about dementia and extending support to the galvanizing structures in the environment.

Courses for people and organizations on how to make spaces more inclusive for people living with dementia.

2. Educational Support for Caregivers

Caring for someone who has Alzheimer’s disease is definitely a hard job. These groups provide how-to guides for day-to-day living with the disease, education, as well as caregiver support.

FCA also has Family Caregiver Alliance www.caregiver.org

For family caregivers of habiting people suffering from Alzheimer’s and other chronic diseases, the FCA provides the care for these members, their navigation, education and information provisions aimed at them.

Principal Resources:

Articles, recommendations, and webinars regarding legal, financial and stress management issues for caregivers.

Caregiver support groups include virtual and in-person support groups for caregivers of patients with behavioral or neurocognitive disorders, with additional groups restricted to caregivers of Alzheimer’s or dementing patients.

The official website for Alzheimer’s Caregiver Support Online (ACSO) is www.alzheimerscaregersupportonline.comThe official website for Alzheimer Caregivers Support Onalilne (ACSO JTA) is www.alzheimerscaregersupportonline.com

Descriprion: The site provides information and practical advising on everything connected with the care of relatives suffering from Alzheimer’s disease.

Key Resources:

Support Networks – There are a number of forums and support groups where the, burdens loved ones of Alzheimer’s patients can communicate with people in similar situations.

Practical advice on everyday issues—feeding, safety, and behavior modification targeting everyday concerns.

ARCh – www.archrespite.org

ARCh-US – This service links different types of services, such as short-term relief from caregiving burden.

Core Materials:

Respite Locator: The tool was designed to help caregivers locate respite services in their locality.

Information related to the scheduling of respite care and assistance regarding financial provision for the organization of such respite.

3. Forums and groups for support.

Support groups are able to offer families and other caregivers who are caring for a patient with one of the varieties of dementia a safe place to share their experiences, gain pointers and support emotionally.

AlzConnected – www.alzconnected.org

This site functions as an interaction if for families and caregivers of people living with Alzheimer’s and the people living with Alzheimers.

Key Materials

Message Boards: Subgroup discussions about problems caregivers face, early stages of dementia diagnosis, Alzheimers and other supportive issues.

Professional answers and Questions & Answers from specialists.

Website: www. facebook.com/groups/memorypeople Facebook Group Description: Family, caregivers and persons suffering from dementia may receive emotional support and valuable assistance through this group. Materials presented within this subsection: Best practice: Self-help group experiences If we talk about education, the solutions given from the members of the group including how to deal with the care issues. Legal and financial issues Particularly to the people who suffer from Alzheimer’s or the person is taking care of someone with Alzheimer’s…it is imperative to control the legal and financial aspects when the planning of long term care is in the works. National Institute on Aging NIA: www.nia.nih.gov The NIA, which is part of the National Institutes of Health, contains a complete repertoire of information addressing Alzheimer Disease and other legal and financial issues related to it. Important References: Legal and Financial Planning: Manuals of legal documentation for families dealing with legal issues such as advance directives, power of attorneys, and financial preparations for potential long-term care requirements. Information about the Alzheimer’s disease research and such broad clinical programs with obligatory participation in clinical trials. ElderLawanswers Description: A tool for finding elder lawyers experienced in long-term care Medicaid estate planning, which is related to Alzheimer’s disease. Legal Orders: The information included in the guardianship documents and living wills, powers of attorney and personal health records etc.

Utilize the tool provided to locate an elder law attorney in your state for issues relating to Alzheimer’s disease and its legal implications.

Website: www.benefitscheckup.org; National Council on Ageing

This is an Internet application that aims to help senior citizens as well as caregivers in finding federal, state and local programs that include local, pharmaceutical and other services and charges, as well as costs of the prescription drugs.

Important Resources: Benefit Programme Details. Information on Medicare, Medicaid, Supplemental Security Income (SSI) and other benefit programs for persons suffering from Alzheimer’s disease,

Tools to help find initiatives addressing long care costs that facilitate financial assistance.

5. Education and Clinical Trials

Alzheimer’s disease is one of the researched area regularly, therefore being involved in clinical trials is an opportunity to try out advanced therapies that have not been available before.

To know more about Act Clinical Trials guarantee visit www.alzheimers.gov/clinical-trials.

Description: It is a primary government website that gives information on research in improving Alzheimer’s and other dementia’s programs and trials.

Important Sources:

Find Trials: Thanks to this specific tool you will be able to search, and subsequently enroll in, clinical trials matching your location and medical condition.

Detail regarding Invitation to Participate in Trial: more information regarding what will be involved in clinical trial participation.

Website of Alzheimer’s Drug Discovery Foundation: www.alzdiscovery.org

Objectives of the ADDF are to expedite the process of drug development which is intended to both treat and prevent Alzheimer’s disease.

Principal Resources:

Research Grants: Opportunities for Getting Funding to those who are looking for ways for the treatment of Alzheimer’s Disease.

The Clinical Trial Finder is a resource that facilitates the search for studies pertaining to drug discovery associated with Alzheimer’s disease.

6. Resources for Education

Learning more information about a disease such as Alzheimer’s disease will make it easy for individuals and their caregivers to manage the disease.

www.nia.nih.gov/health/alzheimers-disease NIA website

NIA is a source of pertinent details on the disease as well as its course, symptoms, treatments and caregiving approaches.

Key Resources:

ADEAR: Alzheimer’s Disease Education and Referral center Comprehensive database of relevant studies, teaching materials and other resources.

Health Topics: Resources for the patients, caregivers and healthcare providers in the awareness and management of the Alzheimer’s disease.

Ultimate:

All struggle caring and/or living with a person that is afflicted with Alzheimer’s disease as well as being a person diagnosed with the same condition. However, these materials are designed to counsel and inform and assist in coping with the challenges presented by the disease. These groups and resources can be of great help throughout the process of alzheimer’s disease whether it be looking for medical, caregiver support, financial resources, community contacts etc.